26Jul/1025
What is Postural Orthostatic Tachycardia Syndrome? Part Two
Postural Orthostatic Tachycardia Syndrome is a form of Dysautonomia. It is a life altering condition that results in a variety of symptoms; the most common being low blood pressure and a high heart rate. Thanks so much for watching!!!! Please help me spread awareness by showing people my videos and just talking about it! We can do this. XOXO,Kyli Credit for some of the information & facts goes to Potsplace.com (Grubb, 2000) Songs are: John Mayer-"Say" & Gnarls Barkley-"Crazy"
June 9th, 2009 - 15:57
My little sister was diagnosed 2 years ago, she is only 13 and for my Graduation project I am doing a power point on POTS.
I hope it’s ok if i use this video? thanks!
June 19th, 2009 - 04:40
hey, my bff has pots. first i didnt understnad. she said she was sick and wasnt getting better. then she explaned. i cryed for th longest time. i love her sooo much and cant stand to think of her in pain or anything. but thank you. this help me learn some new things.! thx :)
July 13th, 2009 - 06:00
i have Ehlers-Danlos Syndrome and POTS is very common with this.
Thanks for making this video. It really gave me a bigger understanding of the disorder. There is a chance I have it cause i show alot of symptoms. POTS could be the reason im always tired.
August 12th, 2009 - 20:16
I have just been diagnosed with Ehlers Danlos and POTS, i have been living in hell for the past 5 months not knowing what is wrong with me, my life has come to a complete stop at the moment, luckily i have the best partner who is getting me through this!! this video is so helpful and its nice to know i am not the only one out there that feels like this, thank you so much!!! xxx
August 30th, 2009 - 02:08
Loved the way you explained it. So creative and the outtakes at the end where awesome. Specifically Miss Ignorance’s appearance at the end talking about her boyfriend being hot! :D
September 9th, 2009 - 21:38
Thank you for posting this. I have had POTS for 3 years and it is sooo hard to explain how i feel sometimes. You did a great job.
September 16th, 2009 - 04:57
Thank you so much for making this. I have POTS too and can appreciate how much effort it took to perform. You are incredibly talented, I am so inspired by you. I really like the thoughtful, nonjudgemental way you responded to comments too. You are making more of an impact then you know!
September 26th, 2009 - 15:25
Thanks for posting this, I’m a 22 year old male who was diagnosed with POTS in 2006. I live in Ontario, Canada and nobody can relate to me, they all think my illness is in my head. I am in my third year of university, and I’ve been off for almost 2 weeks now as I can’t concentrate or do much, I’m hoping I feel a little better soon so I can catch up. I’m not going to let this illness take control of my life. I am on a steroid (Florinef) and an antidepressant (Cipralex) and it seems to help.
October 4th, 2009 - 11:52
Thank you so so much for your videos… you’ll never know how much they comfort and inspire me! When I get really down, I watch your Miss Ignorance video and it helps my mood… I’ve watched it at least 20 times this week after being diagnosed!
Please keep up the good work, you are doing an awesome thing, I can’t wait for some more updates!
October 5th, 2009 - 14:31
I completely agree!
It’s so hard to talk to my friends about how I feel – they don’t understand how tiring daily activities is. Having someone else who’s going through it makes me feel so much better.
I think what makes it so tough (as I’m sure most of you know) is thinking how active you used to be. I was running a few miles on a daily basis – now, if I can go to class without getting tired I’m ecstatic.
October 13th, 2009 - 07:56
Well done Kylie, it explains it well..I love the bit about Miss Ignorance asking can’t you just take medicine. (You forgot the other classics: do you eat well? Maybe try taking vitamins?
October 14th, 2009 - 05:11
I have to say, this is one of the best video’s I have seen to describe everything. Great Job
October 14th, 2009 - 22:50
Hi I live in NCM and read your article in The Press. I would love to talk to you. I have had it since 2007 and it has really affected my life. I see dr nanavati in Court House. I would lo0ve to help spread the word.
October 19th, 2009 - 15:55
My husband just had a regular work physical and asked the doc if he had any ideas for POTS docs in our area as we just moved. The doc totally poo-pooed the disease and when hubby was telling me, I was livid. “Did you tell him this, and this, etc.” Hubby just said it didn’t matter cuz we never have to see that doc again. My point is it is so important to get docs and others educated so POTS patients don’t suffer the misunderstanding along with the disease! Thanks for the video!
October 19th, 2009 - 16:01
BTW….looking for a doctor in Oregon, preferably, Albany or Salem area.
If anyone has any ideas???
November 5th, 2009 - 08:07
I Live with Pots everyday… I was diagnosed a little over a year ago but have been ill for over 5 years. I use to think it was all in my head, because the doctors i went to made me feel that way. When I recieved my diagnosis i cried. not because i was sad to hear it but because i was finally told i was not crazy. I had a name to why i was feeling this pain and illness. There are days when I can’t get out of bed. But I try. Thank you for sharing your story. Ruth B.
November 23rd, 2009 - 22:31
Thank you!
January 28th, 2010 - 09:27
Hi! Can I ask what kind of eye-makeup you use?? I like it very much…=))
January 31st, 2010 - 03:13
im tht way to i used to do tons of sports bein only 12-13 (im 14 now) when i got pots i was very involved now i only do guitar and i want to do dance im workin my way there tho and yesh people just dont understand its ..kinda scary sumtimes
January 31st, 2010 - 03:20
thank you for this! im 14 and my friends dont get it know i can show them this video they dont understand and my friends bein my age dont take the word pots seriously b.c its funny to them but to me its my life so im deff. subbin u thanks
February 23rd, 2010 - 18:12
Great video!! I have a mild case of this from Lyme disease, haha lots of times sitting on the floor in stores while waiting in line.
That was interesting to learn about how it takes more energy for us to stand up than it takes for regular people. It sure feels like it!
Really really good example of communicating about a chronic illness. We need more people with chronic illness to speak up for ourselves and share our side of the story.
March 11th, 2010 - 17:52
hope you get better
April 28th, 2010 - 10:38
thank you so much for creating this video!
June 8th, 2010 - 09:11
Wow. The month I turned 15 I started having regular POTS or neurocardiogenic syncope (not sure which I have) symptoms. Of course I would fall into the range right off the bat
July 18th, 2010 - 07:14
@sn0white68 yah, u hv every reason to be happy now