What is Postural Orthostatic Tachycardia Syndrome? Part One
Postural Orthostatic Tachycardia Syndrome is a form of Dysautonomia. It is a life altering condition that results in a variety of symptoms; the most common being low blood pressure (orthostatic intolerance) and a high heart rate. To find out more, watch the video! I did my best to include as much information as possible - there was so much I wanted to say that it ended up being over ten minutes which is why there are two parts! :) My next videos will be more about my life and how POTS affects me. Please comment, message, & subscribe! I can't wait to talk to all of you. I hope you enjoy it. I have absolutely no idea what I'm doing but I'm learning (& it's been a lot of fun). Credit for some of the information & facts goes to Potsplace.com , (Grubb, 2000).
Tips for dealing with POTS – Part 2
The 2nd of 3 POTS tips videos. In this one I discuss the importance of pacing yourself as well as communicating with your doctors, and much more ! Please note: I know I've said this a lot, but everyone with POTS is unique! We are all so very different. I know when I first got diagnosed, I went from being healthy to being very sick and I was terrified that it wouldn't go away or get better. I realized after I made this video that the mention of things like shower chairs or wheelchairs may be frightening and discouraging to those of you who are in the beginning stages of POTS, and unfamiliar with everything. Please, please, please do not let it scare you or make you feel like you're going to get worse or anything like that. You may never get to that point. And if your blood pressure is more stable & you currently don't find the need for a wheelchair, shower chair, etc, please don't let this video make you feel like you may need one later on. There are so many different variations when it comes to POTS. It's very difficult to generalize an illness like ours. I tried to base the tips on the "average" POTS patient, but the truth is there is no average POTS patient! ((3rd video will be up tomorrow!)) Hope everyone is doing great!! (hugs) Kyli
Tips for dealing with POTS – Part 1
The title describes it! Here are some tips I've gathered over the years, as well as some of your favorites. I think it's so important that as patients of this condition, we share all of the beneficial things we've learned with one another. When I was first diagnosed with POTS, I was lost. It was terrifying to have a condition that no one seemed to know about. Thanks to the internet (I would literally be bedridden if not for its existence) I started the slow process of learning about it. My hope is that even just one person benefits from these videos or learns something new that's helpful to them. Sorry if my voice is kind of scratchy - my throat's been bothering me (allergies!) and I had done way too much talking by the time I managed to film the finished product! LOL. For whatever reason I was overwhelmed by how many tips there are & how much I wanted to say, but in the end I just kind of threw it all together realizing "it doesn't matter HOW I get it across, just that I do!!" :)